CALDER: Culturally and Linguistically Diverse Ethics and Research resources
Clinical research plays an important role in improving outcomes for older patients and provides direct benefits to participants. To participate in clinical research, informed consent is required where patients acknowledge they have understood all dimensions of their involvement. However, research information is often given in highly complex written documents. This not only excludes large sections of our community due to cultural, linguistic, and literacy barriers but also poses scientific challenges as trial data are not representative of the target populations. The CALDER project addresses this problem by exploring the development of a simple, robust, cost effective and accessible method of delivering culturally and linguistically appropriate research information to patients and their families.
- Woodward-Kron, Robyn, Jo-anne Hughson, Anna Parker, Agnese Bresin, John Hajek, Ute Knoch, Tuong Dien Phan and David Story (2016), Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers. Journal of Public Health, 5, 1: 43-51.
- Hughson, Jo-anne, Robyn Woodward-Kron, Anna Parker, John Hajek, Agnese Bresin, Ute Knoch, Tuong Dien Phan and David Story (2016), A review of approaches to improve participation of culturally and linguistically diverse populations in clinical trials. Trials, 17, 1: 263
We-HELP: Western e-Health patient information portal for Pregnancy
Access to accurate and trusted information about pregnancy and to related health services is vital for safe and successful pregnancies. This can be challenging particularly for women (and their families) new to the Australian health system or from socioeconomically, culturally and linguistically diverse backgrounds. The We-HELP project aims to produce a prototype web-app, which efficiently disseminates patient-centred information that is easily accessible and culturally and linguistically appropriate.
Apart from RUMACCC researchers, the team includes clinicians and medical researchers from Western Health and the University of Melbourne and information technology experts.